Thursday, February 29, 2024, 11am – 4pm EST

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An afternoon for genetic and metabolic patients, family members and caregivers, as well as health care providers and research professionals to raise awareness and support for the 300 million people living with rare diseases. We also have the option to attend in-person.
 
Topics for the day will include:

• Keynote address – Neurodevelopmental differences: genetics, resources and strategies.
• Interactive patient panel – The common unique journey.
• Research in rare diseases.
• Rare disease trivia. (with a prize)